NYC



It's obvious I am a horrible blogger.  My husband finished his radiation at the beginning of Setember, and the next few weeks were difficult,nausea for a week extremely tired the next and a combination of both the third week.

He had a few weeks of being almost back, but on this roller coaster of  GBM things can change 
quickly.  We made a trip to NYC to see our son and his girlfriend and went with the flow of the disease.  If Bill had a good day we walked the city and saw the sites , followed by a quiet day of sleeping and seeing the sights of Brooklyn Heights in the afternoon.

Upon returning to Utah we had a month with no MRI.

Started Optune in the begging of December, MRI the week before Christmas and the 
tumor is back ,same spot. A few options, but it's now the New Year and the damn tumor is growing,
it's a very scary time.  I have always looked at the glass half full, I am thankful to have this time with
my husband to tell him a thousand times a day I love him.  I don't want to lose hope, I would like more quality time, not sure if that will happen. 

If you are dealing with awful disease  be aggressive!  It doesn't ever allow you a moments peace.

Not sure if I have talked about Bill and his riding his bicycle in Lotoja, a bike ride from Logan, UT to Jackson Hole ,WY not for the faint of heart, lots of training and more training on top of that ,
it's a 200 + mile ride in one day, , this man has always been the strongest person I know,
that just makes now so much harder.


So many amazing people who have helped us in numerous ways in these past few months.

My dear sweet friend Sara has set up a go fund me page for Bill

https://www.gofundme.com/97qfv-bills-medical-fund




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